World Duchenne Awareness Day 2018
Standards of Care

Everybody around the world will raise awareness for Duchenne Muscular Dystrophy on September 7th. This year, the WDAD theme is Standards of Care. There is a compelling need to ensure that wherever they are in the world, individuals affected by this condition can benefit from a Standard of Care that is informed by the best practice of the best clinicians from all over the world. It is equally important that the information available to families is understandable, contemporary, and based upon the latest research.

This year’s activities will include conferences to update clinicians and other healthcare professionals, the publication of the updated DMD Guide for Families, and the release of a series of educational videos, understandable for young people so they can become advocates of their own health. Education is the first step to implement the latest Standards of Care, and make Duchenne dreams come true!

Guide for Families


Thanks to the collaboration of four not-for-profit organizations – the Muscular Dystrophy Association, Parent Project Muscular Dystrophy, Treat-NMD and the World Duchenne Organization – a thoroughly updated and re-drafted Duchenne Guide for Families is developed. This guide gives parents, families and caregivers access to the information necessary and enables them to work with their health care and support provides in ensuring optimal care.

Educational Videos


In line with the Duchenne Guide for Families, WDO published a series of educational videos, called explanimations to make Duchenne Care information accessible for as many people as possible and more specific for children as well. Each video provides a clear explanation of a different aspect of DMD care. For more info about the videos in the different ages/phases and about how to create the videos in your own language, please visit our special DMD Care website.


World Duchenne Awareness Day 2018 is realized
under the patronage of the European Parliament

Also, Pope Francis supports
World Duchenne Awareness Day 2018


What is Duchenne Muscular Dystrophy?

One in 5000 newborn boys in the world is affected by a rare and fatal diseaseDuchenne Muscular Dystrophy (DMD)Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organisations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.



World Duchenne Awareness Day 2017




World Duchenne Awareness Day 2016
Early Diagnosis



World Duchenne Awareness Day 2015


World Duchenne Awareness Day 2014