World Duchenne Awareness Day 2018
Standards of Care

Everybody around the world will raise awareness for Duchenne Muscular Dystrophy on September 7th. This year, the WDAD theme is Standards of Care. There is a compelling need to ensure that wherever they are in the world, individuals affected by this condition can benefit from a Standard of Care that is informed by the best practice of the best clinicians from all over the world. It is equally important that the information available to families is understandable, contemporary, and based upon the latest research.

This year’s activities will include conferences to update clinicians and other healthcare professionals, the publication of the updated DMD Family Guide, and the release of a series of educational videos, understandable for young people so they can become advocates of their own health. Education is the first step to implement the latest Standards of Care, and make Duchenne dreams come true!

For more info about the videos in the different ages/phases and about how to create the videos in your own language,
please visit our special DMD Care website.

 


World Duchenne Awareness Day 2018 is realized
under the patronage of the European Parliament


Also, Pope Francis supports
World Duchenne Awareness Day 2018
Vatican

 

What is Duchenne Muscular Dystrophy?

One in 5000 newborn boys in the world is affected by a rare and fatal diseaseDuchenne Muscular Dystrophy (DMD)Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organisations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.

 

    


World Duchenne Awareness Day 2017

Dreams

               

 

World Duchenne Awareness Day 2016
Early Diagnosis

 

           


World Duchenne Awareness Day 2015
DUCHENNE STORIES

 

World Duchenne Awareness Day 2014
MANY FACES OF DUCHENNE